We fly out to San Francisco next week to learn more about Reese’s diagnosis. This has not been clear because she lacks the typical gene mutations and/or chromosomal abnormality typically associated with JMML. There is one place that can diagnose my daughter. She is currently participating in a 500 gene study with Dr Mignon Loh at UCSF as a part of her diagnosis.
Please pray for my little girl for the best possible results. Reese had her fourth trip to the emergency room today. Each time her fever spikes we need to go and my brave girl was SO strong. I am so proud to be her mom.